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      • MPconblog Steven Fletcher 1005 post National Spinal Cord Injury Awareness Day Act

        Mr. Speaker, I would like to thank the member for Montcalm for bringing forward this motion to declare a national day of recognition of spinal cord injuries. The member for Montcalm and I have become good friends, as far as we can become friends across the aisle, ever since we had that first race down Parliament Hill, which she won. Then, in my power wheelchair, I think I won the race going up Parliament Hill.

        There are now two people in Parliament with spinal cord injuries. I think it is indicative of how Canada is progressing when it deals with persons with disabilities, but we have a long way to go. Disability crosses a large spectrum, and spinal cord injury is a sliver of that spectrum, but it has a lot of neat characteristics. I would like to share some of those with the House.

        When it comes to acquired spinal cord injuries, the categories are generally quadriplegic and paraplegic, quadra meaning four limbs impaired, and para two limbs.

        In my case, as many people may know, though I do not believe I have ever spoken about it in the House, I hit a moose in 1996 when I was 23. At the beginning of my life, I had a lot of things going for me at the time, and the moose went through the windshield and landed on the back seat. My car went into the ditch and the moose went over me again.

        It was in a part of Manitoba that was remote. There were no cellphones in those olden days. Someone had to find me. Then they had to drive down to the nearest town. Then they had to drive up with the ambulance, then drive me back to Winnipeg. There were no helicopters or anything else to help. It was a tough rescue, and for whatever reason, somehow I survived.

        The reason I raise that is that if my accident had happened 10 years earlier, I would not have survived. People are now surviving injuries that historically were not survivable. That is from the advancement of medicine, and Canada should be proud of that.

        However, on the one hand, we often save people from catastrophes, then on the other hand, not provide the resources or the opportunities to allow those same people to live meaningful and dignified lives.

        Let me explain. I will use my injury as an example, but whatever I am about to say could be transferred to anyone with a spinal cord injury. My injury is what they call a C4 cord injury. If those at home feel behind their necks and count four vertebrae down, that is where my neck is broken. That is a cervical spine, and it was a complete injury that has paralyzed me completely from the neck down, so I do not feel anything. It is just pins and needles.

        One does not feel touch, heat, cold, pain, pleasure, hunger, or temperature. Body temperature regulation is messed up. Many people have problems with blood pressure, strange or unusual bone growth at joints, if they are not taken care of, and a whole host of other issues.

        In my case, I need help with all the activities of daily living. I cannot move, so I have someone with me 24 hours a day. It is sad to say that not everyone is as fortunate as I have been in acquiring that level of care. In my case, I have had a lot of fights with insurance companies and other funding partners and over the years have been able to lay the foundation for a reasonable quality of life.

        However, it was not always that way. After leaving the hospital, I refused to go into an institution, though that was what was offered. I ended up in a one-bedroom apartment with no wheelchair accessible washroom or shower or anything, so it was a tough time. Many people are still experiencing that tough time. In fact, I would say it is the vast majority.

        With quadriplegia, there are some estimates of costs. A quadriplegic in his or her early twenties will cost society tens of millions of dollars if he or she lives a normal life expectancy. A paraplegic costs less than that, but it is still substantial.

        The Government of Canada has provided monies for the Rick Hansen Institute and Brain Canada Foundation and has invested in stem cell research. These are all fantastic investments, and there is great promise in stem cell research. However, we have a lot to do to improve the day-to-day lives of people with spinal cord injuries. When we do that, we also improve the lives of everyone, everyone with an illness, and the elderly. We are creating an accessible society so that people, like the member for Montcalm, can be seen in Parliament, as CEOs of companies, on top of glaciers or mountains, scuba diving, and living life.

        There is a difference between existing and living. As Canadians, if we are going to save people, we need to make sure that they have the option to live meaningful and dignified lives. We need to step up and make sure that the systemic barriers in society are removed. Spinal cord injury awareness day will help us in recognizing the necessity of making society inclusive for everyone, regardless of what type of disability one may have.

        • MPlibblog KirstyDuncanMP 1313 post National Spinal Cord Injury Awareness Day Act

          Mr. Speaker, I am pleased to rise today to support Bill C-643, an act respecting a national spinal cord injury awareness day.

          I would like to congratulate my colleague, the member for Montcalm, for bringing the bill forward and for being an advocate for those living with disabilities.

          Establishing a day to recognize the impact spinal cord injuries have on Canadians, the health care system, and the economy would bring awareness to this debilitating and serious condition.

          Up until 2010, health officials, shockingly, had no idea how many Canadians were living with a spinal cord injury or the economic cost of the condition.

          However, there was a report commissioned by the Rick Hansen Institute that revealed some startling data. I know this House will all want to, and we have heard it already tonight, recognize Rick Hansen, who became a world-class wheelchair athlete before undertaking the Man in Motion World Tour in 1985, during which he rolled more than 40,000 kilometres in 34 countries in two years raising $26 million for spinal cord research.

          The report indicated that there were over 86,000 people living with a spinal cord injury in Canada, or about the same number as the population of Red Deer, Alberta. About 4,300 new cases are identified in our country each year. After speaking with Spinal Cord Injury Canada yesterday, I am informed that the number is now 96,000 Canadians. Approximately 51% of spinal cord injury cases are the result of traumatic injury and 49% are the result of non-traumatic injury or, rather, diseases such as ALS and cancer.

          The report laid out, for the first time, the scale, magnitude, and cost of a spinal cord injury in human and economic terms. This was an important milestone because measuring the extent of the problem is the first step in developing strategies for preventing, mitigating, treating and, hopefully one day, curing spinal cord injuries.

          Spinal cord injuries require substantial medical care. Canadians with a spinal cord injury who are admitted to intensive care units have reduced mortality and morbidity, as well as improved neurologic recovery. The average length of a hospital stay after the initial injury is 140 days, or almost five months, including critical care, acute care, and in-patient rehabilitation.

          New methods for treating spinal cord injury are being studied, including surgical decompression, therapeutic hypothermia, and neuroprotective agents.

          The economic cost of traumatic spinal cord injury is $3.6 billion a year, including $1.8 billion in direct medical costs. The lifetime medical costs, in the words of a recent study, for a quadriplegic exceed $3 million and for a paraplegic, $1.6 million. For Canadian families, the average cost of a manual wheelchair is $4,000 to $5,000 and the average cost of a power wheelchair is $10,000 to $15,000.

          The long-term health care costs are not due to paralysis but, rather, to medical complications. Severe depression is also common among people with a spinal cord injury. Treatment for depression accounts for almost half of physician visits.

          These are just numbers and do not speak to the impacts on the person affected and on the families. I cannot begin to imagine how frightening and overwhelming are the days, weeks, and months following a spinal cord injury. Everything changes in an instant and people will have many questions.

          Canadians with a spinal cord injury need to know that they are not alone and that there are people and organizations that will help them through acute care, rehabilitation, and a return to the community. Canadians with a spinal cord injury need to know there are resources available to help them find the latest information on research, clinical trials, and rehabilitation techniques that may have an impact upon improved function and recovery. They need to know that there are financial resources, peer support, and organizations that can help renovate their home to make it accessible, get assistive devices to help with everyday tasks, and help them return to the community.

          As a country, we can and must do more to support Canadians living with spinal cord injury and their families. All levels of government must work together to put in place essential measures to secure the right to education and economic participation. We need policies and programs that promote physically accessible homes, hospitals, schools, transportation and workplaces, inclusive education, elimination of discrimination in educational and employment settings, vocational rehabilitation to optimize the chance of employment, micro finance and other forms of self-employment, benefits to support alternative forms of economic self-sufficiency, access to social support payments that do not act as a disincentive to return to work, and correct understanding of spinal cord injury and positive attitudes toward people living with it. The member for Montcalm's bill would help to raise awareness, and this is positive.

          The Urban Futures institute predicts that the number of people living with spinal cord injury will increase sharply in the coming years, reaching 121,000 in 2030. The expected increase is largely due to the aging population. Older people have more falls and suffer disproportionately from illnesses such as cancer.

          I have had the honour and privilege of working with Canadians with physical and mental health challenges my whole life, and everyday I learn from them and am inspired by them. I also want to recognize the work of all health practitioners and organizations which work hard to improve the quality of life of Canadians living with a spinal cord injury and their families.

          I know many of us have taken part in Spinal Cord Injury Canada's chair-leader event, during which we spend the day in a wheelchair and live first hand what accessibility really means. We learn very quickly the obstacles Canadians in chairs face. Everything is harder. It is hard to manage the chair. It does not always turn well. Getting into an elevator is hard, managing in the washroom is hard, reaching counters is hard, getting up and down Parliament Hill is really hard, and cars do not always see the chair.

          The chair-leaders event is extremely important to get exposure for people in chairs, to raise awareness, to see the obstacles people face, to understand that there are financial hurdles and that we as a society must do more to help. The member for Montcalm's bill would ensure that, annually, there would be a day devoted to raising awareness about spinal cord injury.

          In closing, spinal cord injuries have severe, long-term impacts. They affect almost 100,000 Canadians and their families, have far-reaching consequences, including financial hardship and caregiving needs, and the number of Canadians suffering is increasing as the population ages. The costs for people suffering from spinal cord injuries number in the billions. Spinal cord awareness would foster an environment for greater research into new treatment options. Awareness would help provide doctors with improved options for treatment.

          Let me once again congratulate the member on her bill and let us all remember there is life after injury. Canadians with spinal cord injuries are active, social, and vibrant members of our communities. Let us all celebrate ability and fight for more help for Canadians with spinal cord injury and their families.

          • MPconblog Cathy McLeod 1471 post National Spinal Cord Injury Awareness Day Act

            Mr. Speaker, it is a real honour to stand in the House today to speak about spinal cord injuries. This important issue deserves a discussion not only in Parliament but at the national level. I would like to take a moment to thank the hon. member for Montcalm for introducing this bill.

            Bill C-643, an act to establish national spinal cord injury awareness day, proposes the designation of the third Friday of September each year as national spinal cord injury awareness day. At a fundamental level, this bill is about raising awareness of spinal cord injuries across Canada. It acknowledges the many challenges faced by Canadians living with spinal cord injuries as well as the critical role played by those who provide support and care for people with spinal cord injuries. It recognizes the important and significant contribution of the scientific community in improving the lives of thousands of people living with spinal cord injuries through research.

            According to the final report of the national population health study of neurological conditions, entitled “Mapping Connections: An understanding of neurological conditions in Canada”, there are approximately 120,000 Canadians living with neurological conditions caused by spinal cord injuries. From this report, we also know that the incidence of spinal cord injuries is likely to be anywhere in the range of 1,400 to 1,700 a year over the next 20 years. These are alarming statistics. However, for Canadians living with spinal cord injuries, they are not just numbers.

            Our Conservative government recognizes the significant impact spinal cord injuries have on the individuals affected, their families and friends, their community, and society at large. Spinal cord injuries entail enormous human, social, and economic burdens. There are staggering personal costs, including the cost of care and support over a lifetime. That is why raising awareness of injury prevention initiatives is critical. This includes the important initiatives our government has undertaken as well as those undertaken by national and regional non-governmental organizations. Reducing injuries among all Canadians, including spinal cord injuries, is important and achievable by increasing awareness of spinal cord injuries and by reducing the risks.

            Who of us, in our younger days, did not dive into a body of water not knowing what the depth was? There are many risks we take, and awareness is certainly important.

            Through the Public Health Agency of Canada, our government is involved in enhancing efforts to increase awareness of sports-related injuries among children and youth, which in turn will help to reduce many different preventable injuries, including spinal cord injuries.

            I will give the House some examples over the next few minutes of some of the interventions that are happening.

            In 2011, our government provided $5 million over two years to support injury prevention initiatives that reached Canadian children and youth in the communities where they live and play. The overall goal of the active and safe initiative was to reduce sports and recreation-related injuries sustained by children and youth, up to the age of 19, who participate in hockey, snow sports, cycling, and swimming. Through community-based activities, this investment increases injury awareness in sports and recreational activities by empowering Canadians to make safe choices for their children to reduce the risk of serious injuries, such as brain and spinal injuries.

            We have recently gained a better understanding of the impact of falls on older Canadians with the release of the Public Health Agency of Canada's “Seniors' Falls in Canada: Second Report”, which was released in May, 2014. This report confirms that falls are the leading cause of injury among Canadians over the age of 65, with approximately 20% to 30% of seniors experiencing one or more falls per year. Of those seniors who experienced injuries due to falls, 8% involved injuries to the back or spine. That is a statistic I was completely unaware of.

            In addition to supporting injury prevention initiatives, our government continues to support spinal cord injury research through the Canadian Institutes of Health Research. The work of its top researchers contributes to understanding the changes in neurons and support cells that could prevent and alleviate chronic neuropathic pain syndrome and could improve the recovery of limb function following spinal cord trauma or neurotrauma.

            There are number other world-renowned organizations that work tirelessly toward reducing spinal cord injuries and disabilities. They advocate for improved quality of life for Canadians with spinal cord injury and continue to raise awareness of this issue. One of these organizations, which is a name familiar to many of us in this chamber and to Canadians across the country, is the Rick Hansen Foundation.

            Before I speak specifically about the foundation, I would like to take a few moments to acknowledge the truly inspirational Canadian that Rick Hansen is. Although Rick suffered a life-changing spinal cord injury as a teenager, losing the use of his legs due to an automobile accident, he maintained a positive outlook. Through rehabilitation and steadfast determination, he continued to keep moving forward. Rick was involved in sports and eventually became a highly respected advocate for people living with a disability. At the 1982 Pan Am Games, held in Halifax, Rick took home nine gold medals. He was also hugely successful at both the 1980 and 1984 Paralympic Summer Games, winning gold, silver and bronze medals.

            In 1985, Rick set out on a two-year journey known as the “Man in Motion World Tour”. This was a visionary quest to demonstrate to the world that people living with a disability had huge potential and could contribute to society if communities were more accessible and inclusive. This was the raison d'être for raising awareness of spinal cord injuries and disabilities in Canada and around the world.

            Shortly after completing this tour, the Rick Hansen Foundation was established in 1988. In addition to finding a cure, the foundation endeavours to accelerate the progress in prevention and care of spinal cord injury as well as raising both awareness and funds to support people with disabilities.

            On the 20th anniversary of the Man in Motion World Tour in 2007, our government announced funding for the foundation in support of its search for a cure for spinal cord injuries.

            From 2007 to 2013, we have provided $30 million to the foundation to implement a spinal cord injury data system across the country and to support spinal cord injury research and the promotion of best practices in spinal cord injury care so Canadians affected by spinal cord injury can benefit from an improved quality of life.

            The spinal cord injury registry started in Vancouver in 2003 and has since expanded across Canada. As of 2013, the registry was operational in 31 facilities in 15 cities. It is a huge accomplishment for the foundation, and our government is proud that we have played a role in its success.

            Some of this funding also supported the creation of the Rick Hansen Institute in 2007, which is focused on research and care management. This institute is an independent not-for-profit organization committed to accelerating the translation of discoveries and best practices into improved treatments for people with spinal cord injury. This means that the institute leads a network of people with spinal cord injuries, researchers, service providers and other stakeholders that facilitate greater collaboration within the care and cure communities nationally and around the world. It is truly commendable work and it showcases the steadfast pursuit to achieve a world without paralysis after a spinal cord injury.

            To keep the momentum going, the government announced $35 million to support some additional work of the Rick Hansen Foundation in spinal cord research.

            Many other activities are currently happening, but certainly the designation of the third Friday in September as a national spinal cord awareness day would highlight these and other related commemorative events throughout the year.

            Raising awareness about an issue such as spinal cord injury is a positive action. It is a simple action that can have profound effects on those living with a spinal cord injury. Most important, if we can prevent future injuries so we can turn the tide on the troubling statistics, it will be time and effort well spent.

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The electoral district of Montcalm (Quebec) has a population of 122,825 with 99,604 registered voters and 237 polling divisions.


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